Friday, February 27, 2009
600 hours of chemotherapy completed today!!! Yahoo!
Thursday, February 26, 2009
If I had to do it all over again.....
I don't really feel like blogging right now. I've been up since 1 a.m. and when Steve realized it, he started me on all my meds and I'm feeling slightly better...but honestly not really. My kids have gone to school and work and of course, Steve had to go to work so I'm waiting on my sister to come over. It is may be the 2nd time I've called and asked someone to stay because I've been so nauseated and very topsy-turvy on my feet. They don't want to stand up without me tumbling over so I guess this is a recliner day again! :-)
Just wanted to leave the words of Erma Bombeck that many I'm sure have read over the years but I thought it was worth noting again. Good thoughts are welcome reminders.
If I Had My Life To Live Over
by Erma Bombeck
Just wanted to leave the words of Erma Bombeck that many I'm sure have read over the years but I thought it was worth noting again. Good thoughts are welcome reminders.
If I Had My Life To Live Over
by Erma Bombeck
The following was written by the late Erma Bombeck after she found out she had a fatal disease.
If I had my life to live over, I would have talked less and listened more.
I would have invited friends over to dinner even if the carpet was stained and the sofa faded.
I would have eaten the popcorn in the 'good' living room and worried much less about the dirt when someone wanted to light a fire in the fireplace.
I would have taken the time to listen to my grandfather ramble about his youth.
I would never have insisted the car windows be rolled up on a summer day because my hair had just been teased and sprayed.
I would have burned the pink candle sculpted like a rose before it melted in storage.
I would have sat on the lawn with my children and not worried about grass stains.
I would have cried and laughed less while watching television - and more while watching life.
I would have shared more of the responsibility carried by my husband.
I would have gone to bed when I was sick instead of pretending the earth would go into a holding pattern if I weren't there for the day.
I would never have bought anything just because it was practical, wouldn't show soil or was guaranteed to last a lifetime.
Instead of wishing away nine months of pregnancy, I'd have cherished every moment and realized that the wonderment growing inside me was the only chance in life to assist God in a miracle.
When my kids kissed me impetuously, I would never have said, "Later. Now go get washed up for dinner."There would have been more "I love you's".. More "I'm sorrys" ...But mostly, given another shot at life, I would seize every minute... look at it and really see it ... live it...and never give it back.
© Erma Bombeck
Have a wonderful day!
Love to all,
Leah
Wednesday, February 25, 2009
One Phase of my Chemo is completed.....let's dance in the rain!!
Be on your guard; stand firm in the faith; be people of courage; be strong.So stand Strong and fulfil God’s will.
1 Corinthians 16:13
Today was another normal day at the clinic with the wait times. I was concerned we were going to sit down there all day and not get my treatment again. The nurses were so nice and concerned and kept checking my blood chemistry and cell counts. Some were low but barely passed what they would allow for chemo. My platelets had moved from 72,000 to 125,000 and the cut-off was 100,000. They said safety first. They would not want to give me this treatment unless I surpassed 100,000 but they really want to see 300,000-400,000 so it will be interesting how this treatment treats, Me-the Chemo Princess! ha.
I'll be back on Friday to get it removed and that is when everything really starts knocking me out. I must say all the pre-meds they give me now really start working on me immediately. It was the first time I felt like the room was moving and decided to close my eyes and viola, I was out! I woke up and saw that I only had a minute on the chemo they were administering at the moment. Y
eah for me. Steve keeps me informed, I'm sure out of boredom. He still does not complain. :-) Such a wonderful man.....
eah for me. Steve keeps me informed, I'm sure out of boredom. He still does not complain. :-) Such a wonderful man.....So enough of all the boring talk....Let's Dance....in celebration!
Another thought I would like to pass on.
“Life is not about waiting for the storms to pass…it’s about learning how to dance in the rain!”
We all face adversity in our life. However, it’s not the adversity, but how we react to it that will determine the joy and happiness in our life. During tough times, we can spend time feeling sorry for ourselves, or, we can, with gratitude…’learn how to dance in the rain’
Gratitude, can change our attitude, thus, our lives, forever. We can dig a deeper pit for ourselves by moaning and groaning about our problems or we can sing our way to victory…. our choice.
Let there be a shout in your camp today for God is for you, look up your redemption draws near, ’sorrow may last for a night but joy will come in the morning,’ sickness may strike you but the lord is still ’the health of your countenance’ and ‘your healer.’
Sarah Breathnack penned these words…“When we choose not to focus on what is missing from our lives but are grateful for the abundance that’s present….we experience heaven on earth.”
Draw strength in your day and don't forget when you slow down and take the time to dance in the rain, I'm waltzing in spirit right beside you! :-)
Love to all,
Leah
Tuesday, February 24, 2009
In your struggles of life, are you a coffee bean, carrot or an egg?
As you already know by reading my blog, this is the 3rd time I've gone to get my last treatment. First it was my white blood count and then it was my platelets so I'm hoping this time, everything is back to normal.
Typically they will do a blood transfusion if my platelets are not back up in order to get my treatment completed. As I've already noted the other day, the first sign is bleeding gums. Well, mine were pretty bad last night and the first thing I thought was, "Oh no, not again......I want the chemo part over". However, as I think about it, there could be reasons that I do not know but my Protector who knows all things may.....therefore, I shouldn't be so hasty in my decision to push the treatment, although it is frustrating.
I'm a little worried about getting the treatment also. The neuropathy in my fingers and feet have been really bad and have not recovered from the last treatment. I could cut off the tips of my fingers and not feel anything but yet they are extremely sensitive to cold. Go figure. They wake me up in the middle of the night because they hurt so much. I was looking through pictures today and the pictures felt so cold to my hands, I finally had to go to my recliner, turn on my heating pad and put my hands behind my back and warm them up. It is very hard to explain the tingling, hurt and burning because it isn't a normal pain....but I've learned that with the pain that chemo brings. I just try to bear it and hope tomorrow is better. What do you do? You just tie a knot and hang on.....sometimes I may dangle from the rope but I'm still holding on. :-)
I saw this story and found it thought provoking, hope you do too! Please God, help me to be a coffee bean! Amen"
A daughter complained to her father about her life and how things were so hard for her. She did not know how she was going to make it, and wanted to give up. She was tired of all the fighting and struggling. It seemed as though in solving one problem, two more would arise.
Her father, ( a chef ) took her to the kitchen. He filled three pots with water and placed each on a high fire. Soon the pots came to a boil.
In one he placed carrots, in the second he placed eggs, and the last he placed ground coffee beans.
He let them sit and boil without saying a word. The daughter impatiently waited, wondering what he was doing. In about twenty minutes he turned off the burners.
He fished the carrots out and placed them in a bowl. He pulled the eggs out and placed them in a bowl. Then he ladled the coffee out and poured it in a cup. Turning to her he asked. "Darling, what do you see?" "Carrots, eggs, and coffee," she replied. He brought her closer and asked her to feel the carrots. She did and noted that they were soft. He then asked her to take an egg and break it. After pulling off the shell, she observed the hard-boiled egg. Finally, he asked her to sip the coffee. She smiled as she tasted its rich aroma. She humbly asked. "What does it mean Father?"
He explained that each of them had faced the same adversity, boiling water, but each reacted differently. The carrots went in strong, hard, and unrelenting. But after being subjected to the boiling water, they softened and became weak.
The egg had been fragile. Its thin outer shell had protected its liquid interior. But after sitting through the boiling water, the insides became hardened.
However, the ground coffee beans were unique. After they were in the boiling water, they had changed the water.
"Which are you," he asked his daughter. "When adversity knocks on your door, how do you respond? Are you a carrot, an egg, or a coffee bean?
How about you?
Are you the carrot that seems hard, but with pain and adversity do you wilt and become soft and lose your strength?
Are you the egg, which starts off with a changeable heart? Were you a fluid spirit, but after difficult times, have you become hardened and stiff. Your shell looks the same, but are you tough with a stiff spirit and heart?
Or are you like the coffee bean? The bean changes the hot water, the thing that is bringing the pain. When the water reaches it's peak temperature, it just tastes better.
If you are like the bean, when things are at their worst, you get better and make things better around you. When people talk about you, do your praises to the Lord increase? When the hour is the darkest and trials are their greatest, does your worship elevate to another level? How do you handle adversity?
Are you a carrot, an egg, or a coffee bean?
Blessed is a man who preseveres under trial; for once he has been tried, will receive the Crown of Life, which the Lord has promised to those that love him.
As always, love to all, Good night!
Leah
Saturday, February 21, 2009
Today has been another lazy day!
P.S. I finally updated the pictures at the bottom to show newest treatments, family pictures, etc. I still do not have pictures from the tea but will show them as soon as I do!
Saturday-
Haven't even gotten out of my pjs today. My body isn't totally pain free but I feel pretty good compared to most days. The sun is beautiful outside but it is still too cold!
We just had another dinner brought to us (even though I told them I didn't have chemo this week, they insisted) so we will just have to eat it. ha. All the food that has been brought to our home has been so delicious! I can do alot of things for other people but cooking is not one of the great things I do. :-) It may because Steve has cooked for us so many years. He is the first one to leave everyday and the first one usually to get home. He has taken upon himself to be the cook of the house. No complaining here.
Pam, we did find Angela a dress. Vernie-it is not hoochie either. She tried on 4 dresses, they all fit and were beautiful but she picked one and it looks beautiful on her. I couldn't believe it was that easy. However, I was pretty tired by the time we started putting dresses on her so I was really glad we were able to find something so quickly.
Kimberly is supposed to be home tonight so we might take Angela out, just to be with her by ourselves. I guess this means I'll have to get out of my pjs and really get dressed. :-( I wish pjs were acceptable. I wear them 24/7. I never thought I would be saying that....but life has a way of changing our minds.
Don't forget church tomorrow. It is the best day of the week. It is where my faith is nourished and my strength is made stronger. As I've said before, I hate the struggle but Thank God for the strength. It is something I could not have ever imagined and can't even really explain it today. It has been a very bumpy ride but not without purpose. Life has never seemed more grand, relationships more important and God's grace and mercy more evident. Amazing Grace, how sweet the sound....
Make the most of your day and stay warm!
As always,
Love to all,
Leah
Saturday-
Haven't even gotten out of my pjs today. My body isn't totally pain free but I feel pretty good compared to most days. The sun is beautiful outside but it is still too cold!
We just had another dinner brought to us (even though I told them I didn't have chemo this week, they insisted) so we will just have to eat it. ha. All the food that has been brought to our home has been so delicious! I can do alot of things for other people but cooking is not one of the great things I do. :-) It may because Steve has cooked for us so many years. He is the first one to leave everyday and the first one usually to get home. He has taken upon himself to be the cook of the house. No complaining here.
Pam, we did find Angela a dress. Vernie-it is not hoochie either. She tried on 4 dresses, they all fit and were beautiful but she picked one and it looks beautiful on her. I couldn't believe it was that easy. However, I was pretty tired by the time we started putting dresses on her so I was really glad we were able to find something so quickly.
Kimberly is supposed to be home tonight so we might take Angela out, just to be with her by ourselves. I guess this means I'll have to get out of my pjs and really get dressed. :-( I wish pjs were acceptable. I wear them 24/7. I never thought I would be saying that....but life has a way of changing our minds.
Don't forget church tomorrow. It is the best day of the week. It is where my faith is nourished and my strength is made stronger. As I've said before, I hate the struggle but Thank God for the strength. It is something I could not have ever imagined and can't even really explain it today. It has been a very bumpy ride but not without purpose. Life has never seemed more grand, relationships more important and God's grace and mercy more evident. Amazing Grace, how sweet the sound....
Make the most of your day and stay warm!
As always,
Love to all,
Leah
Friday, February 20, 2009
It is freezing outside!!! Brrrr....
Oh my goodness, I opened the door today and it felt like I was in Alaska! I can't imagine those who work outside. I'm so sensitive to cold that my fingers and feet have been on fire all morning because I opened the door and exposed them to cold air. I can't even imagine living back in Indiana where my family lives with the snow, ice and cold....Oh Lord!! ha.
I tried exercising today to continue to build up my energy. Next week, when I get my final chemo treatment (hopefully), my body will be so revved up that I will fly right through it. Cross your fingers, cross your toes! ha. I know it is the prayer that gets me through. :-) Believe me, positive thoughts might make you feel better but they don't give you the comfort you need to make it through.
Kimberly is still on her ski trip, had a slight mishap the day before yesterday but all is well. She called last night to say she had skied all the black diamond trails. I've never even gone skiing. They sounded like they were having a good time. Angela had to work all evening and all day today so it is an empty house. Wow, I feel too young to have a empty house.
I woke up feeling nauseated for some reason today. I thought I might research common side effects of low platelets. I was told if your platelets don't come up on their own, the only way to fix it is to have a blood transfusion. I'm not sure why but this is one time, it really makes me feel sick to my stomach just thinking about getting someone else's blood. However, most who have chemo have to have blood transfusions often and I've not had to at all. Now we are down to the last treatment and my blood has played out the possibility. UGH! Please pray that my counts stay up!!
Hope everyone has a wonderful weekend!
As always, love to all,
Leah
I tried exercising today to continue to build up my energy. Next week, when I get my final chemo treatment (hopefully), my body will be so revved up that I will fly right through it. Cross your fingers, cross your toes! ha. I know it is the prayer that gets me through. :-) Believe me, positive thoughts might make you feel better but they don't give you the comfort you need to make it through.
Kimberly is still on her ski trip, had a slight mishap the day before yesterday but all is well. She called last night to say she had skied all the black diamond trails. I've never even gone skiing. They sounded like they were having a good time. Angela had to work all evening and all day today so it is an empty house. Wow, I feel too young to have a empty house.
I woke up feeling nauseated for some reason today. I thought I might research common side effects of low platelets. I was told if your platelets don't come up on their own, the only way to fix it is to have a blood transfusion. I'm not sure why but this is one time, it really makes me feel sick to my stomach just thinking about getting someone else's blood. However, most who have chemo have to have blood transfusions often and I've not had to at all. Now we are down to the last treatment and my blood has played out the possibility. UGH! Please pray that my counts stay up!!
Hope everyone has a wonderful weekend!
As always, love to all,
Leah
Wednesday, February 18, 2009
Well, never mind....no chemo for me today!!
After going to the lab to have the line put in for my chemo treatment, I went to my doctor's appt.
She first came in and said my red/white blood counts looked really good and gave me a hug. We spent most of our time trying to figure out when I would be able to return to work.
After going over all of this, she went back out to get the final results on my blood and found that although my cell counts looked good, my platelets were too low. The first sign is usually bleeding gums. I normally don't talk about all the grose side effects but thought this wouldn't be so bad.....I've had the bleeding gums the past few weeks but thought it was from the cumulative effect of the chemo treatments....so I didn't say anything. Well, it usually is the first sign that your platelets are low and sure enough it caught up with me.
There is not a shot they can give to get your platelets back up so she said, we would have to wait another week. This only prolongs my pain and getting back to normal so this is one time, I'm not happy to delay. I just want it to be overrrrrrrrrrrrr!!!
However, on the good side I realized that by being on delay it would give me opportunity to go shopping with Angela for her prom dress. Yes, I know her prom isn't until May but why wait? Since Kimberly just left to go on a ski trip, this leaves only Angela at home. So, this gives us time to spoil her by herself; since I've been home with Kimberly for the past 8 months, this will give Angela some time with us to herself. All kids need alone time with parents, I believe....
So, it is not a lost cause....I'm sure I could use a few days to catch up on seeing my 90 yr. old grandpa and playing cards or doing something creative other than sitting in my chair all day. ha.
Thanks for the prayers....hopefully next week will be the final charm. I did find out in 9 weeks they will start all the testing....
Take Care,
As always,
Love,
Leah
She first came in and said my red/white blood counts looked really good and gave me a hug. We spent most of our time trying to figure out when I would be able to return to work.
After going over all of this, she went back out to get the final results on my blood and found that although my cell counts looked good, my platelets were too low. The first sign is usually bleeding gums. I normally don't talk about all the grose side effects but thought this wouldn't be so bad.....I've had the bleeding gums the past few weeks but thought it was from the cumulative effect of the chemo treatments....so I didn't say anything. Well, it usually is the first sign that your platelets are low and sure enough it caught up with me.
There is not a shot they can give to get your platelets back up so she said, we would have to wait another week. This only prolongs my pain and getting back to normal so this is one time, I'm not happy to delay. I just want it to be overrrrrrrrrrrrr!!!
However, on the good side I realized that by being on delay it would give me opportunity to go shopping with Angela for her prom dress. Yes, I know her prom isn't until May but why wait? Since Kimberly just left to go on a ski trip, this leaves only Angela at home. So, this gives us time to spoil her by herself; since I've been home with Kimberly for the past 8 months, this will give Angela some time with us to herself. All kids need alone time with parents, I believe....
So, it is not a lost cause....I'm sure I could use a few days to catch up on seeing my 90 yr. old grandpa and playing cards or doing something creative other than sitting in my chair all day. ha.
Thanks for the prayers....hopefully next week will be the final charm. I did find out in 9 weeks they will start all the testing....
Take Care,
As always,
Love,
Leah
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